James Lanning
Primary lymphedema

I grew up in Gander, Newfoundland and Labrador. I graduated with a Bachelor of Commerce degree.

In 2016, I completed my Chartered Professional Accountant (CPA) designation, and I now work as the Controller for Seafair Capital in St. John’s, Newfoundland.

I was diagnosed with primary lymphedema (praecox) at age 14 after my friends in a hockey dressing room noticed I had one leg bigger than the other. A series of tests ruled out a concern for cancer, but the end result concluded a diagnosis of lymphedema. This began a journey of navigating a health care system that seemed to know very little about the management and treatment of this condition. It also ended my dream of becoming an NHL player.

Over the years I have experienced several serious infections, which have caused my condition to worsen. I self-manage by wearing JOBST® compression garments during the day and sometimes at night. On occasion I require intensive treatment with bandaging and manual lymphatic drainage.

I lead an active lifestyle, which includes hockey, golf and softball. Balancing lymphedema with my busy life can be a challenge, but I try to lead a normal life.

I have spoken at conferences including the National Community Health Nurses Conference (June 2016), the Canadian Association of Wound Care Conference (November 2016), the Canadian Lymphedema Framework/Lymphedema Association of Quebec Conference (October 2017) and the Newfoundland & Labrador Lymphedema Association Public Forum (September 2017).

This is my story!